Severe unknown allergic reaction?

[shauna]

If you can't breathe, it's an emergency.

ALSO - you and your mother should check out two conditions: mastocytosis and Mast Cell Activation Disorder (MCAD, or MCAS). These are rare disorders that often involve chronic, unexplained hives, although experts are thinking MCAD may be more 'rarely diagnosed' than actually 'rare.'

There are Facebook groups you can find if you search on Facebook for mast cell disorder, mcad, mcas, or mastocytosis. I mention this because they have very good files in their files section on symptoms AND testing for this.

Not only do most doctors not know this disorder, they often don't even know how to TEST for this, and will do the wrong tests. A tryptase test at the ER while you are reacting might be of use, actually. But the files talk about all of this.

Other than the files on these support groups, there's not much on the web that's of use, because it's all about mastocytosis, not MCAD.

Wishing you good luck. I hope you find the answers.

Oh, if it's not MCAD? I would highly recommend an elimination diet AND eliminating as many chemicals as you can from your home, with your parents' help. Chemical sensitivities can cause hives sometimes, like sulfites, and a food allergy, if it was something like corn, which is in everything due to so many corn derived or contaminated ingredients, you would react all the time. Again, most doctors don't check for this, in my experience. :-(