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My wife has been sick for 2 years and doctors dont know why (stomach)?
04-06-2014, 07:14 AM
Post: #1
My wife has been sick for 2 years and doctors dont know why (stomach)?
my wife has been to the doctor about 50 times in the last 2 years, the gastroenterologist 4 times.
they said her stomach and upper gastrointestinal are acting "limp" and they dont know why. she can hardly eat anything and is currently 86.6 pounds. only thing that seemed to help was to eat some types of gluten free foods. most foods, even gluten free foods still hurt her stomach. raw veggies spices and meat really irritate her stomach. her endoscopy resulted in food not being pushed out of her intestines. they tested for crohns and parasites. negative. we tried a candida cleanse but she cant stomach the pills. pus in stool. nausea all day. constipation. acid reflux. dizziness and fainting. she is so hungry but most of anything she eats tries to come back up or really upsets her stomach . we are desperate and changed doctors 3 timesthey dont know what to do next. her stomach just isnt working. please help. she takes reglan, zofran, acid reducers and enemas on the daily.
they did check for celiacs and it came back negative. im trying aloe extract to try healing her stomach so that she may eat. currently she wont travel. she has a massive fear of vomiting and vomit. i thought fecal transplant was illegal now in the U.S. ill check. once she is able to travel i will force her doctors to admit her to the hospital. its like the doctors dont care if she dies. all 4 of them from different clinics. currently she can only eat, gluten free coco pebbles, silk (soymilk), cream cheese, gluten free bread, and a tiny piece of ham. just those on the daily. any more and she has a horrible night. some times she can stomach a quarter teaspoon of nutella. now she is 86.6 pounds. we live in fresno ca and we dont have a mayo clinic near by. we need a doctor that cares. all of this started 3 months before she gave birth to my son. we still have the candidapills but she cant take them yet. i need her to get admitted and intravenously helped. her tummy cant handle much more an

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04-06-2014, 07:23 AM
Post: #2
 
so, so sorry to hear that!

First, something that might help you find something to investigate is to make a list of all her symptoms - try to find the technical terms for them. Like, low blood pressure is called hypotension, for example. Then google 'symptoms' plus terms like disease, or disorder, or auto-immune/autoimmune and plug in a few of her symptoms, in various combinations.

Often, you will get results for various diseases that may have some relevance to what she has. OR, you will find forum posts from people who have similar symptoms, and some of the answers they get may help you figure out where to go from here.

Some conditions I know of that might be worth exploring, at least.
1. Gasroparesis. This has to do with the stomach no longer moving foods along, as I understand it.
http://www.mayoclinic.org/diseases-condi...n-20023971

2. A mast cell activation disorder, or mastocytosis. These are conditions where the mast cells - which normally degranulate during an allergic reaction, can be activated by things that are NOT an allergy. And sometimes, they can degranulate slowly, so the body's reaction to these doesn't seem like an allergic reaction at all. It can cause diarrhea, constipation, vomiting, pain, nausea, inflammation, fatigue. Many people with this have pain all the time, have problems with TONS of foods and getting foods they can eat okay. Many have bone pain, too. Some have hives and anaphylaxis, and those are the symptoms you usually hear of if you look on medical sites for information, but many people with this never to rarely get those, or if they do, it's atypical so they (and sometimes their doctors) don't even realize that's what it is (like sudden nausea followed by diarrhea and then fainting - that is some people's anaphylaxis, where the fainting is their blood pressure dropping suddenly). You can live through anaphylaxis sometimes, in these cases.

Many people with this also have something called POTS (postural orthostatic tachycardia syndrome) or other dysautonomia type disorders. These often cause dizziness and fainting, if not caused by the mast cell issues themselves.

These are both considered VERY rare disorders (less than 200,000 in the USA, although experts who study them are postulating that they may be more 'rarely diagnosed' than as rare as first thought. The Mastocytosis society is a good place to go for some help in hunting down potential doctors who know about this - they are hard to find and quite literally, most doctors won't know what this is or even HOW to test for it, or how to read the results properly if they find out what the tests are. So you want an expert if at all possible.

The BEST sources of information for mast cell activation disorder (MCAD) or mastocytosis that I've found are actually facebook groups. They have, in their files sections, very good, thorough, and up to date information, and they are very active and people are very willing to ask questions and help you determine if this is worth exploring for your wife. And most people there are used to being chronically ill, losing weight, worrying about just surviving - you will find people who understand there, you know?

There is the mastocytosis society facebook page, a few on MCAD or mast cell issues, like 'Mastocytosis and Mast Cell Disorders-Integrative and Holistic Approach' and 'MCAD (Mast Cell Activation Disorder) and Related Conditions'

These may have nothing to do with your wife's condition, but perhaps at the very least, some information there may help lead you to something else.

3. Gluten free thing - if she's an undiagnosed celiac who is SUPER sensitive, she might be helped by a super-gluten free diet. This article talks about some folks who have this (she's have blunted or destroyed villi in a biopsy from an endoscopy, in this case): http://celiacdisease.about.com/b/2013/03...mptoms.htm

Also, did they check to see if she had a stretched colon or megacolon, by any chance? That can happen due to chronic constipation I understand, and keeps feces from moving along as it should, and there are treatments available. This link discusses children with this issue, but I believe a lot of the information is still relevant: http://www.virginia.edu/uvaprint/HSC/pdf/12012.pdf


Wish I had more for you. I was lucky in that I got sick more slowly; it took me over 20 years to find my answers (mast cell issues AND celiac disease). I wish the best for you and your wife!

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04-06-2014, 07:31 AM
Post: #3
 
Anton,
When a doctor tells you that they donno whats acting weird up your stomach then you gotta do some of your own research.

Have you read candida solution by candida expert sean brookwood or eric bakker? Have you tried their suggestions?

I suffered from similar symptoms for years until I started taking probiotics which helped me big time. Try probacto probiotics but again they are pill as you said she cant stomach the pills so I donno. But read some of their research and that might help.
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04-06-2014, 07:43 AM
Post: #4
 
Foods that are light on the stomach are in the following list. http://www.newhealthguide.org/Food-For-U...mach.html. I would recommend having her tested for a small leak either in her intestine, gall bladder and potentially the liver and or pancreas. They should be able to inject a dye and perform a scan. Best Wishes. Jesus loves you and I am praying for you both.
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04-06-2014, 07:58 AM
Post: #5
 
Your wife may be a good candidate for a fecal matter transplant.

Don't laugh, it's a real procedure that has cured very serious digestive symptoms, like the ones you describe here. Read the CNN article I posted with this answer - a fecal matter transplant saved a 19 year old girl's life in Georgia in 2011.

If it is a candida overgrowth, you can get a powdered form of Lufenuron online and take it with fatty foods like avocados. Lufenuron works by attacking the candida cell wall, which is made of chitin - the same thing insect exoskeletons are made of. Our white blood cells can't penetrate a chitin cell wall, which is why candida overgrowths don't just go away. There are blood / saliva tests for candida overgrowths, just make sure any doctor you consult is open-minded enough to believe that candida may be the problem, and make sure they use the right kind of lab test. Be aware - killing off a candida overgrowth will cause lots of gas, bloating and uncomfortable digestive symptoms. Kefir yogurt, caprylic acid (derived from coconuts) and probiotics may also help control a candida overgrowth.

Good luck!
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